we want To create a world in which there is a readily available cure for SPG50.
Our Mission
Jack’s Corner is a 501 (c)(3) nonprofit organization dedicated to improving the quality of life and finding a cure for children with SPG50 through the acceleration of gene therapy treatments, funding of research, and raising awareness of the disease.
501(c)(3) Tax ID: 88-2262496
Our purpose
Create a world in which there is a readily available cure for SPG50.
Our Vision
No parent or child affected by SPG50 ever feels hopeless again.
Terry Pirovolakis & GENE THERAPY
When we were told that our son Jack had SPG50 it was nothing short of devastating. On the darkest day of our lives, however, we were also given a ray of hope. A dad in Canada whose son had SPG50 had been working for years to develop a gene therapy to treat the disease. The gene therapy had the potential to cure Jack.
Canadian hardworking dad Terry Pirovolakis has been searching and fundraising for a cure for SPG50 for his son Michael since 2019 and has gotten a gene therapy clinical trial approved through the American FDA.
Jack’s Corner hopes to continue the momentum of the work conducted by Terry’s team which is comprised of scientists and doctors from UT Southwestern, Boston Children’s Hospital, University of Cambridge, Sick Kids Toronto, the Jackson Laboratory, University of British Columbia, University of Copenhagen, UNC School of Medicine and The National Institutes of Health.
Jack’s Corner will assist with funding for the research, manufacturing, and administration of an exciting gene therapy treatment, called “Melpida”, for kids who have been diagnosed with SPG50.